Oncology appointment

It is more of the same, chemotherapy for three weeks and then a break for one week provided my blood levels do not continue to fall. I am overtly sensitive to the medication and therefore I may have to have yet a further reduction in strength. However, should I continue to improve through receiving chemo then they are aiming to ‘stabilize’ me with a view to giving me more time off therapy and a possible referral for the expensive and little known about Cyberknife treatment, which is not off the cards just yet.

I have been given some water tablets for my swollen ankles and will start on them tomorrow.

So, things are looking good at the moment and if I continue to improve as I have been doing then there is no reason why I cannot expect a better quality of life once again, but this time without overdoing things when I am feeling fine.

Anal GP

Just as you turn the corner and you think things are on an even keel and that the pains are partially under control, enough to live by, when you get a phone call from a jumped up GP who believes he knows my pains better than me and obviously does not trust his colleague [my actual doctor] who did a medication review with us less than two weeks ago!

After getting onto me for taking ‘controlled’ drugs in such quantities, as cleared by the MacMillan nurse, the Oncologist Doctor at the hospital and my own GP he wants to cover his own arse and is more interested in the paperwork to say I am taking this medication. Why he hasn’t looked on the files they have on me or phoned the hospital I do not know but he sees it fit to upset me and insist that I supply the information his surgery should have before he prescribes any more medication.

My MacMillan nurse is now onto the surgery and I have said if it happens again I am taking the surgery through a complaints procedure until they get it into their tiny little minds that I need the medication to nullify the pains.

One of his concerns is that I could die in the night if I overdosed, he took a step back when I told him I was going to die anyway with or without the tablets that are there to make my life better, something phone calls like this do not do.